Research conducted over the course of two decades by the Swedish Karolinska Institute found that married aging adults were half as likely to develop dementia as their single counterparts. The scientists behind the research believe that the intense social interaction of living with another person may be the reason behind this resistance. The research was based on a study of almost 1,500 people over the course of 21 years.
Maria Shriver helped cared for her father, who suffered from Alzheimer’s, and has become a champion of Alzheimer’s Caregivers. Her journalism career began with KYW-TV in Philadelphia, Pennsylvania, but she soon moved up to the National News and later gained a different sort of fame when she married Arnold Schwarzenegger. The former First Lady of California has been a lifelong advocate for people with intellectual disabilities and recently co-authored an Alzheimer’s study with the Alzheimer’s Association.
Princess Yasmin Aga Khan cared for her mother, Rita Hayworth, who was suffering from dementia. Yasmin is internationally recognized for her advocacy work promoting awareness of Alzheimer’s Disease.
Steve Slater cared for his father, who suffered from Lou Gehrig’s disease, until his death. In 2010, while caring for his mother who suffers from Lung Cancer, Steve achieved national notoriety for quitting his job as a JetBlue Flight Attendant in spectacular fashion.
Susan Boyle was the primary caregiver for her elderly mother until she passed away at the age of 91. In 2009, two years after her mother passed away, Susan appeared on Britain’s Got Talent and gave a performance of “I Dreamed a Dream” that made her an International Sensation overnight.
Rosalynn Carter helped care for her father when he was diagnosed with terminal leukemia and has since cared for several family members, including her late mother who died in 2000 at the age of 94. The former First Lady of the United States has even authored a book on Caregiving entitled, Helping Yourself Help Others – A Book for Caregivers.
Can you think of Famous Caregivers that we’ve missed? Let us know in the comments and we’ll add them to the list.
In the past, I’ve told you about software like KeePass , the Oprea Browser, and Skype; software that offers some useful benefits for Seniors and their Caregivers. Today, I thought I’d mention a piece of software that I’ve been hearing goods things about that’s geared towards professional Homecare Agencies .
First, two quick disclaimers: 1) Elder Depot wasn’t put up to this, the only reason we’re promoting this software is that we’ve been hearing good things about it and because it strikes us as pretty useful. 2) As a supplier of Eldercare Products, Elder Depot does business with a lot of Homecare Agencies but we’re not a Homecare Agency and we haven’t actually used this software. So, Caveat Emptor.
Running any business can be a complicated headache at times, that’s all the more true for Home Care Agencies that face challenges like strict legal requirements, a need for accurate scheduling, and the difficulty of managing staff at a distance. My wife works at an Adult Day Program that tackles many of these problems by juggling several computer programs, mapping and remapping the weekly schedule on a giant dry-erase board, and making heavy use of cellphones. That kind of solution works… It even works well. But there’s something appealing about what is by most accounts an intuitive, easy-to-use, and integrated software package that does the same and more.
HomeTrak is a piece of software designed specifically to meet the management, scheduling, and legal needs of Home Care Agencies.
Judging from their website, the four words that guide HomeTrek’s design are Schedule, Manage, Serve, & Grow. At it core, the software is designed to get jobs scheduled, that sounds simple but it can be complicated. HomeTrak simplifies the process by providing detail and up-to-date information on clients and caregivers, while keeping track of referrers.
I thought the emphasis on integrated referral management was pretty insightful. The HomeTrak website breaks that down into the following benefits.
- Keep track of anyone or any business that is sending clients and caregivers to your organization.
- How many new referrals did you receive yesterday?
- How many new clients did you receive yesterday?
- How long is it taking to turn potential clients into active clients?
- Information from the referral module can be used to make educated marketing decisions.
HomeTrak offers the following benefits in regards to clients. I thought it was particularly useful that it tracks changes to a client’s records – what an improvement over paper files, where you’d have to do detective work to track down who to ask about a change.
- Tracks required dates specific to each client.
- Allows for a permanent schedule and visit plan.
- Records all the skills required to accommodate a client’s needs.
- Connects external documents to each client for easy reference.
- Tracks changes made to a client’s records, including information changed, who changed the information, and when it was changed.
- Imports and exports demographic information with other contact management and accounting software.
- Manages referral sources and contacts through the Referral Management System.
Staff Management is pretty straightforward but with enough detail. I like how it integrates skill-sets that it can then compare to Client needs.
- Stores caregiver photographs.
- Multiple options available for pay rates.
- Connects external documents to each caregiver for easy reference.
- Allows viewing of all clients that the caregiver is currently assigned to visit.
- Allows viewing of all changes made to a caregiver’s record, including information changed, who changed the information, and when it was changed.
- Allows creation of user-defined skills, user-defined locations and user-defined compliance data.
Scheduling. That’s what caught my interest when I first heard of HomeTrak. There are so many features here that I thought were so useful. In particular, I like the automation that saves management staff so much legwork and how the software keeps Client family members in the loop.
- Automatic alerts to open schedules and caregiver overlaps.
- Suggests caregivers best suited to care for clients based on user defined parameters.
- Only matches available caregivers that meet the client’s request.
- Client and caregiver information is visible side-by-side for a better match.
- Eliminates double scheduling of shifts.
- Notifies scheduler when a caregiver might go into overtime.
- Invoicing and payroll are based on a confirmed schedule, thus eliminating errors in client billings and caregiver pay.
- Single entry of duplicated data eliminates human errors.
- Information is archived for later retrieval as needed.
- Saves time and money by e-mailing schedules and other pertinent information directly from the schedule module to caregivers, clients and their families.
- Provides integrated directions to client homes using an interface to Google Maps, an extraordinary new concept that allows viewing of maps to the client’s home and viewing driving routes between schedules.
As if all of that weren’t enough, HomeTrak also manages finances including Payroll and Billing.
- Calculates payroll for any time period.
- Calculates payroll for all caregiver groups or a single group.
- Make minor adjustments to calculated payroll.
- Easily creates payroll reports for both active and posted payroll periods.
- Exports payroll to QuickBooks timecards.
- Moves payroll information to the sales history system, so you can view profit and loss by type of work performed, clients visited, or payers.
- Calculates billing for any time period.
- Calculates billing for all client groups or a single group.
- Produces an invoice that can include your company logo, and/or a tear-off remittance section.
- Creates billing reports for both active and posted billing periods.
- Sends invoices to QuickBooks accounting after created.
- Capable of billing for holidays by individual client.
- Allows correction of posted billing.
- Easily creates invoices between normal runs for estate payment.
- Capable of billing for mileage, errand mileage and expenses.
Quick and easy-to-generate reports have become an industry standard… But it’s nice to see them here.
- Easily generate, display and print reports.
- Choose the report or options that you want.
- Quickly find the information that you need.
- Create professional looking caregiver name badges.
- Simple to generate mailing labels or envelopes for clients, payers or caregivers.
Management by…Telephony? I thought this was amazing and it saves management so many hassles.
- Eliminate paper time sheets for good!
- Client is no longer required to sign timesheets thereby avoiding potential conflicts
- Significantly streamline payroll and invoicing
- No additional phone lines or hardware required
- Disciplines caregivers to show up on time and work for the authorized period
- Provides management with a unique and powerful caregiver management tool
So… Maybe now you understand why I was impressed? I’m not alone, it seems like more and more Home Care agencies are switching over. I can’t say if HomeTrak is as good as it’s features or reputation make it out to be…but I think it’s one of the best examples of modern information technology put to a practical use that I’ve seen in a long time.
This morning as I was driving to work I heard an interesting interview on the radio about ‘Super Mamika’. No, Super Mamika isn’t a copycat of Super Mario, it’s a series of themed photographs by Sacha Goldberger featuring his Hungarian grandmother in the role of a superhero. Mamika means ‘Little Grandmother’ in Hungarian, so the literal translation is Super Little Grandmom.
The story behind ‘Super Mamika’ is that Goldberger noticed that his grandmother, after a long active life, was becoming bored and depressed in her later years. Like many concerned family members he brainstormed ways to engage her, though the solution he came up with does stand out as being more than a little unique.
The ‘Super Mamika’ series of photographs were only the beginning for Frederika Goldberger. She has continued modeling for photographs as can be seen on her MySpace page.
Fortunately you don’t have to be a professional photographer or even an artist to engage your elderly loved ones. It’s not only good for Seniors socially and emotionally but some studies have shown that mental stimulation “may” help slow the spread and lessen the symptoms of cognitive decline, as we’ve mentioned before. Of course, the more personal the better…apparently Frederika loves the humor of her Superhero counterpart…but here are a few general suggestions to get you going. Nothing quite as unique as Super Mamika.
- Pictures: Looking at old family pictures together is one of the classic ways to engage Seniors. However, an often overlooked activity is showing Seniors unfamiliar pictures as well as familiar ones. Books of amazing photography and picture heavy magazines like National Geographic can be very stimulating.
- Card Games: Games like Bridge, Pokeno, and Pinochle are old favorites of many Seniors. Large print playing cards, card holders, and automatic card shufflers can enable individuals with dexterity or vision impairment to continue to play their favorite games.
- Puzzles: Puzzles can captivate Seniors for hours, keeping their mental juices flowing and focusing their attention on putting together a stimulating image. For Seniors with dexterity or vision difficulties, it’s recommended to look for puzzles with Large Pieces. Large Print Crossword Puzzles can also be a great help.
- Book Clubs: Getting a Senior involved in a slower paced book club can do wonders for them both mentally and socially. If the book club is inter-generational, all the better…as long as they’re reading books that have large print editions available.
What activities have you used to fight Senior Boredom and Depression? Share them in the comments and I’ll add them to the list.
I was reading one of the Caregiver Blogs we follow and I came across an excerpt that I had to share.
Tonight, Patti and I sat sipping hot chocolate while snow flurries danced around us. While Patti’s memory of the moment melted with the snow, I couldn’t help but reflect perhaps we caregivers / carers are like snowflakes and no two are the same.
Read more at CaregivinglyYours.com
Creamy Ensure® Eggnog Pudding
Makes: 4 servings
- 1 1-ounce package instant vanilla sugar-free, fat-free pudding mix (can be substituted with one 3.5-ounce package regular instant vanilla pudding mix, if desired)
- 1-1/2 cups COLD Ensure® Homemade Vanilla Shake*
- 1/2 teaspoon ground nutmeg, plus a dash for the top
- 1/2 teaspoon artificial rum flavoring
- 1 teaspoon pure vanilla extract
- 3/4 cup fat-free whipped topping, divided
- In a mixing bowl, combine the pudding mix, Ensure Homemade Vanilla Shake, nutmeg, rum flavoring, and vanilla extract.
- Whisk vigorously for 2 minutes until thick.
- Fold in 1/2 cup whipped topping.
- Divide the pudding into 4 serving dishes.
- Chill for 1 hour.
- When ready to serve, top each with 1 tablespoon whipped topping and a dash of nutmeg.
- Serve chilled.
Nutrition Facts (if prepared with Ensure®)
Serv. Size: 1/2 cup (106g)
Calories From Fat: 40
Amount Per Serving % DV†
Total Fat 4g 6%
Trans Fat 0g 0%
Cholesterol 0mg 0%
Sodium 160mg 7%
Potassium 155mg 7%
Total Carb. 20g 7%
Protein 4g 8%
Vitamin A 10% Vitamin C 20% Calcium 15% Iron 10%
One of the best ways for a caregiver to find answers, reassurance, and understanding is to connect with other caregivers. To help with that, here is a list of blogs run by caregivers. If you know of any blogs that should be added to this list, let us know!
Personal Caregiver Blogs
- 3 Years and 13 Dumpsters: Cleaning House After Alzheimer’s – “A personal, moving, yet often funny exploration of the impact of Alzheimer’s on sufferer and family alike; from denial to diagnosis, from care-giving to cleaning out the house.”
- A Blog inspired by Mom’s Brain – “An online journal about Alzheimer’s caregiving”
- A Caregiver’s Life – “Award-winning journalist Susan Thomas is the full-time caregiver for her mother. Join her as she chronicles the joy and despair of caregiving.”
- A Day in my Life – “I am a retired teacher living in a very small town in Oklahoma. I spend a lot of time caring for the discarded, abandoned, and strayed cats of this community. I have had 2 cats ‘fixed’ and they have indoor/outdoor privileges. These cats keep my blood pressure low and a lot of conversation with my husband about their antics. My husband is in a nursing facility now and he misses their funny ways.”
- A Forgotten Daughter – “Welcome to my crazy world of being a mother of two young ones and helping with my mother who was diagnosed with Early Onset Alzheimer’s two years ago. “
- A Miggy Moment – “I am a mother of six, a grandmother of eleven and a great grandmother of fourteen. I have authored five books, am a would-be poet but, between you and me I am just one more pilgrim on the journey of life following hard after her God. God has been with me every step of my life, including: the never-ending battle with my husband’s Alzheimer’s and Parkinson’s disease, the challenge of raising our mentally handicapped daughter, Melissa, the slow decline of my body while my mind seems to stay front and center, the new life lessons I am learning as I approach my nineties, and the summa cum laude I received when I finally handed over the car keys”
- A Place to Scream – “This about enjoying life to the full with my lovely partner- I scream my head off here so I can pretend to be coping when I have to. MS has robbed my darling of the use of much of her body but has increased our determination to share our love to the full and get as much fun out this world as we can glean. Sometimes it all gets to much so I need to scream about it.”
- Are U My Mother – “Walk with me and Susan as we journey through Alzheimer’s together, her as the victim and myself, the care giver. Together we will experience the good the bad and the wonderful.”
- Aromick’s Blog – “My husband of more than 50 years is a victim of Alzheimer’s disease, and we have just completed six years since diagnosis. The journey has been heart wrenching as AD has changed Ken from a bright, articulate and friendly man who had remained physically strong, capable and remarkably independent into a shuffling old man who is now dependent upon my care and the kindness of others.”
- Arthur & Bernie – “Hi, I’m Laura. Arthur is my friend. He’s a retired English professor who lives in Manhattan. Bernie is my grandfather. I call him Pop Pop. He’s a former business owner who lives in small-town Pennsylvania. Me, I’m a writer, and I live in Brooklyn.”
- By My Side At Dusk – “A Daughter’s Eldercare Journal.”
- Caregiving – “Caregiving for my Dad, living the dementia roller-coaster, reflecting on disability and the Christian faith.”
- Caregivingly Yours – “Sharing the trial and error learned lessons of a spouse caregiver about family, home care, and transition to the care facility era from 20 years of living with Multiple Sclerosis as a family.”
- Caring for Lauren – “Hi, I am Mom to Lauren, who is a 24 year-old young woman with severe, multiple disabilities. Lauren requires care in every aspect of her life. This blog will be a journal of the struggles and joys of providing care for Lauren.”
- Caring for Person with Parkison’s – “I have decided to blog about my experiences, good, bad or whatever they turn out to be, as a full-time carer for my spouse with PD further complicated by the addition of dementia. I am doing this for an outlet for me, and for others to read if they find the blog!”
- Chrissy’s Moments – “Chrissy is my mother who has some form of dementia. Most times I call her Chrissy instead of mother; it provides a little distance from daughter to caregiver. She has a gentle and sweet presence; along with, a sense of humor that I get to enjoy most days. Mother has seven children, three of whom live out-of-state. This blog was created so that her precious moments and updates could be shared. Please feel free to comment.”
- Cura Personalis – “Caregiving for my Dad, living the dementia roller-coaster, reflecting on disability and the Christian faith.”
- Dad’s Dementia Decline – “An honest and candid blog about being thrown into the world of Dementia after my Dad’s recent diagnosis which left my whole family reeling from shock. While Dementia does not define my Dad, there are ugly and raw feelings that have no where to go when one is watching your loved ones struggle with this nasty brain disease and its effects on everyone.”
- Dementia ain’t for Sissies – “Caring for a Mom with Dementia.”
- Days in Dementiaville – “I’m a caregiver by accident but I chose to do the best job of it that I can. I hope by sharing some of the day to day with you, we can all benefit from the knowledge acquired along the journey with Alzheimer’s.”
- Dementia Nights – “I’m a writer, photographer, consultant. Age 50. My father was a reporter and editor. Then he became something other than that. He died February 8, 2010 at 87. He was widowed in 2003. His decline started a little earlier. His sister died of Alzheimer’s.”
- Dying to Help – “Caring for a loved one with cancer or other terminal illnesses”
- Doonan diddly-squat – “In this blog ‘Chartreuse’ takes time out to reflect about living with, caring for and being cared for by a home, a garden and a partner with primary progressive aphasia. Recollections about family, travel and other matters will occasionally intrude.”
- Elder Mentor – “I’m a free-lance writer and social worker in long term care. I’ve been working with the elderly population for nearly 15 years. My areas of specialty and interest include Alzheimer’s and dementia care, palliative care and social policy. On a personal note, I help care for my father who has dementia, Alzheimer’s type. He is truly an inspiration to me and reminds me not to take life too seriously.”
- Fibroworld – “We’re a mother-daughter team. Dot is in her late twenties and has had fibromyalgia, chronic pain and migraines for nearly 4 years. Fibro Mom is a 60-ish, sometimes crabby caregiver who works part-time.”
- From the Planet Aphasia – “Do you ever feel like you are living in a parallel universe? Can you see and hear the ‘normal’ people but you’re not sure if they see or hear you? Welcome to my world! Caregiving for a stroke survivor.”
- From the Coastland – “The eldest of the second family, I look after our mother who is in a long term care facility. This BLOG was to be a way for family and those who live further a field, to stay in touch. Mom is 94, confined to a wheelchair and almost blind from glaucoma, she loves the family visits. Unfortunately, as families go, most are too busy to visit, even my own, hence the BLOG. What is a person to do?”
- Getting A Foothold – “Like life, TBI has its pitfalls, and caring for a person with TBI is no different. The challenges are there and we meet them together as best we can. Sometimes it is harder to get a foothold than others and sometimes we slip. We help each other back up, and sometimes others help us instead.”
- Grateful Discoveries – “The 2010 posts were centered on Caregiving and sharing how I cared for my Mother in 24/7 mode until her death on 10/11/10. Topics for 2011 will include actively working through bereavement, reconnecting with volunteer efforts and adding an ‘Aging In Place’ consulting and construction arm to my business.”
- Go Ask Alice…when she’s 94. – “I’m a woman in my 60s who, like many others, finds that one of my main tasks in life these days is taking care of my mother. Alice is 94.”
- “had a dad” alzheimer’s blog – “My father’s 3 year journey, now ended, through Alzheimer’s Disease (AD) and my feelings about it.”
- Help! Aging Parents! – “I was a far-away-living adult child whose parents died during this decade. I continue to be a far-away-living daughter-in-law of my husband’s inspirational mother, who still lives independently in her home at age 97.”
- I am an Alzheimer’s Caregiver – “My name is Bob DeMarco, I am an Alzheimer’s Caregiver. My mother Dorothy, now 93 years old, suffers from Alzheimer’s Disease. We live one day at a time.”
- In All These things – “Our Journal with Alzheimer’s“
- Inside Aging Parent Care – “Caring for the Desperate Caregivers of Aging Parents.”
- Life with Shaky – “Chronicles of my sometimes funny, sometimes sad, but always enlightening journey of a woman whose husband is diagnosed with Parkinson’s Disease.”
- Life without Memories – “This site was created to provide support for caregivers of people with Alzheimer’s or dementia and is based on the experiences of my family and friends as well as site visitors who cared for their loved ones who suffered from these terrible illnesses.”
- Memories from my Life – “An Alzheimer’s blog: Caregiver tips, News articles, Science findings, and Diary of Life with My Mom (who has Alzheimer’s)”
- Mom, Me and Alzheimer’s blog – “It’s been 20 years since my dad was taken away suddenly and mom cared for herself fairly well until Alzheimer’s slowly started taking her life away.”
- Mom Moves In – “An 87-year-old mom copes with moving in with her daughter (and vice versa)”
- Moving In With Dementia – “I am a Unitarian Universalist minister, wife and mother to a six year old son. In August of 2009, my husband, son and I moved in with my parents because my 73 year old mother has dementia with Parkinson’s-like symptoms. This blog is a reflection on how this disease affects our whole family.”
- Multiple Sclerosis Carer – “My husband Don Dufty, an MS sufferer, is a retired Minister of the Uniting Church in Australia. He was diagnosed in 2005 and the MS progressed so rapidly he was admitted to a nursing home in 2008.”
- Musings of a Cranky Caregiver – “Family caregiver to a wonderful woman, Skip, who’s had MS for more than 20 of our 28 years together. ‘Mother’ to Ruby and Addy, two great mini-dachshunds.”
- My Awesome Maltese – “I’m a middle aged Mom who loves reading blogs. I enjoy tennis, mah jongg, spending time with my family and my awesome Maltese. I have spent a great deal of time this past year traveling back to my hometown to care and spend time with my ninety year old Mom.”
- My Demented Mom – “5 million Americans suffer from Dementia. My mom is one of them. A site for young adult caregivers struggling and coping with ‘the long goodbye.'”
- My Mama’s Keeper – “A work at home caregiver’s journey.”
- My Wife has MS – “A raw look at the struggles of Multiple Sclerosis through the eyes of a spouse.”
- Notes from a Caregiver – “When my husband had a stroke early on the morning of July 4, 2005, I felt all alone and unprepared to deal with the situation. He was only 42, I was six months pregnant, and even after scouring the Internet, I was unable to find a support group or someone to talk to. This blog is created for people like me, who just need to know someone is out there. I encourage you to post comments and ask questions – I will answer you as often as I can, just as I will be asking questions of my readers.”
- Orphan at 60 – “I write and speak about feeling like an ‘orphan’ at sixty years of age. Five months after my mother died, my father passed away. Sharing my experiences as a daughter, caregiver, wife and mother hopefully will help others who are grieving over the loss of their parent.”
- Ricky’s Legacy Blog – “I’m a single mom watching my father lose the battle against Alzheimer’s. Being in my thirties, I sometimes feel some self pity for what the disease is taking away from me, my kids, and my parents. As a nurse I know that my dad is riding the beginning of the baby boomer wave that will make Alzheimer’s a national tragedy. I’m hoping by letting others into my world while we ‘wrestle the beast’ so that some people won’t be knocked to their knees like we were.”
- Risa’s Pieces – “Any stories told in this blog about unnamed persons reflect my actual experience as a palliative care provider. Details have been changed in order to protect their privacy.”
- Sandwiched In – “This is my account of my actual experiences living sandwiched between generations in the suburbs of the northeastern United States begun in January 2008.”
- See No Evil, Hear No Evil – “A blog about life with a blind husband, a hard-of-hearing daughter and a blind son… and how God delivers us from every evil and grants us peace in our day.”
- Slow and Easy: The caregiver’s journey with people who have Parkinson’s Disease – “Michael J. Fox has brought attention to the needs of those suffering from Parkinson’s Disease, but caregivers are also trapped by the disease and don’t know how to cope. This is my journey with my husband as the disease has taken more of him away from me. The grief never stops for either of us, but, through faith, we have learned to make the best of every moment.”
- Taking Care of Mom and Dad – “The Fifth Commandment. Deuteronomy 5:16 (New International Version) 16 ‘Honor your father and your mother, as the LORD your God has commanded you, so that you may live long and that it may go well with you in the land the LORD your God is giving you.’ My attempt at honoring my mother and father as they age and are unable to care completely for themselves.”
- The Amazing Aging Mind – “This site is my personal journey toward discovering the causes and meaning of Alzheimer’s and other dementias. My sister and I are stay-at-home daughters caring for a mother with end-stages Alzheimer’s and a father with (as far as the docs can tell) Parkinson’s disease.”
- The Bear Hug Waltz – “I have been a caregiver for my mom for over 4 years. She is 96 and in the late stages of dementia. I have 4 grown sons,8 grandchildren, and one on the way!”
- The Caregiver Blog – “Welcome to our community. We invite you to share your thoughts or questions related to caregiving for the disabled and chronically ill. We offer resources, education, and support to our community. We advocate that all individuals have true worth and should live with dignity and independence. Feel free to send your blogs and share or find the information to help your community.”
- The CareGivers Blog – “Life changes and so do we. This is a blog about my journey as my 90-year-old mom’s caregiver. I figure if I can make this enjoyable reading then maybe my life (and my mom’s life) will be more enjoyable too.”
- The Caregiver Resource – “Ideas, Answers, Observations & Travels from a Creative Caregiver.”
- The Chuck Hileman Blog – “On Sunday morning, February 8, 2009, my father, Chuck Hileman, suffered a severe stroke. In this blog, my sisters, my brother, and I will be following our father’s recovery and rehabilitation”
- The Dahn Report – “Daily Journal, Caring for Elderly Parents, Life’s Moments, Movies, TV, Comedy.”
- The Dopamine Diaries – “My goal is to provide a down-to-earth, spunky, and humorous glimpse at the heartache and joys of witnessing life with dementia and Parkinson’s disease through my mother, and to provide a forum for related discussion and support. “
- The Life of a Caregiving Daughter – “I guess I should just name this blog The Life of a Caregiver and move on from there that seems to be the only thing I am these days.”
- The Younger We Get – “An occasional, sometimes humerous look at my life, while I take care of my elderly parents, and try to write.”
- The Zen of Caregiving – “Finding transformation in the process of caregiving. Updates on my adventure of caring for a husband with Alzheimer’s.”
- Walking into the Fog – “My mother and I are dealing with Alzheimer’s. My mother has the disease, or some other deteriorating dementia that the doctors can’t diagnose until after she’s gone. It’s just easier to use the term Alzheimer’s, because then, people understand instantly. I’m her caregiver.”
- When Caregiving Calls – “I am a small business owner in Florida. My husband and I have been together for going on 11 years, and married for going on 7 years. My mother-in-law was diagnosed with AD…a year or so ago.”
Group Caregiver Blogs
- Alzheimer’s Reading Room – “The Alzheimer’s Reading Room has clear, concise, usable news, research, insight and advice for the entire Alzheimer’s community. 100 Million Americans have been touched by Alzheimer’s Disease, 35 million are worried about Alzheimer’s Disease.”
- Hospice Care of South Carolina – “Hospice is a philosophy of care focused on improving the quality of life for people with an advanced illness.”
- SarahCare: Senior Caregiver Support – “Honest advice for the realities of elderly caregiving.”
- SarahCare: Senior Chronic Care – “Reconsidering chronic care management for Seniors.”
- Support For Home – “At Support For Home, we know a lot about senior care and home care for folks who need assistance with Activities of Daily Living. But, we will never know everything, and that means we will never know enough, and that drives us crazy! So, this blog is all about us sharing what we know and inviting others — families, seniors, organizations, colleagues, competitors — to share in our discussions, our ideas, our challenges, our passion.”
Last time we checked these blogs hadn’t been updated in quite some time, but they still contain compelling stories and useful insights. Check them out and if one is up and running again let us know so we can update this list.
- 950 Miles Away – “I created this blog so that I would have a place to write about my experiences as the long-distance caregiver for my mother who is in the early stages of Alzheimer’s Disease. So that I can write freely and honestly, without bringing embarrassment on my mother or my extended family, I decided to blog anonymously.”
- Alzheimers – The Carer’s View – “And Last But Not Least – The Caregiver…”
- AlzHub – “I came face to face with Alzheimer’s when one of my parents was diagnosed with it. I have been both a full time and a part time caregiver. This site grew out of my desire to learn as much as I could about Alzheimer’s. It allows me to keep the info I find readily accessible to me and share it at the same time.”
- A Note from One Mom – “Mom to five grown children, Grandma to eight, full-time caregiver to my stroke survivor husband, designer of eco-friendly children’s party supplies, early morning walking maniac, Food Network groupie, tech challenged, believer in God’s Word and seeker of joy in each and every day.”
- A Stroke of Love – “On February 10, 2006, an aneurysm in Jan’s brain ruptured. This blog is a place for us to tell you how she is doing and how we are providing care for her.”
- Caring and Sharing – “Mort, 57, in ill health with arthritis, MS, back problems. Just recovering from recent heart attack. Full time, 24/7 carer for my 89 yr old mother, who is crippled with severe arthritis. Getting very forgetful now bless her.”
- Caring for Cathy – “Our Families Journey Caring for a Mom with FTLD-MND. It is important to know as you read this journal that this was Cathy’s life post diagnosis… To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.”
- Dementia Blues – “Funny/sad ruminations by a baby boomer on having two parents with dementia.”
- Dethmama Chronicles – “The True Adventures of a Hospice Nurse.”
- Fading from Memory – “What happens to a family when both parents are diagnosed with Alzheimer’s disease? This weblog chronicles the experiences of one such family in Sydney, Australia.”
- Feedin’ Mama – “Feedin’ Mama began when I started a blog as a way to share my experiences and the things I have learned while caring for my own mother and my elderly aunt in their final years.“
- Loving Grand – “A Granddaughter’s Alzheimer’s Caring Journal; My journey with Gram and how I contributed to her walk into the sunset, sometimes funny, sometimes we shed a tear or three, and always dear to our hearts and embedded into our soul. I love you Gram.”
- Marina’s Abundance – “Marina Gonzalez had an abundance of love to give and this blog is to honor her memory.”
- Mondays with Mother – “In 2002 my mother was diagnosed with Alzheimer’s. It is a hard road, and we live it one day at a time. This is a chronicle of her disease and my Monday visits with her.”
- Living with Alzheimer’s – or, What day is it again? – “A continuing story of what it is like to live with a mother with Alzheimer’s disease. Stressful, tiring, often funny – each day brings new challenges. Read about coping ideas, family involvement, laughter and tears. Does someone you know suffer from alzheimers? Maybe this blog will sound familiar.”
- My Dad’s Stroke – “My dad had a stroke. It happened. This is his tale of recovery told from his daughter’s point of view. Some of it isn’t pretty.”
- Never Goodbye – “Navigating the journey through dementia.”
- The Journey – “This began as a journal of my mother’s progression through Alzheimer’s, but I began it too late. Her journey is over, but mine is still on-going. I hope to chronicle here the journey that I take – the one through grief, acceptance and, ultimately, surviving Alzheimer’s.”
- The Reality of Dementia – “I’m sharing with you what is the emotional progression of a family dealing with Dementia. My father was diagnosed with FrontalTemporoDementia in late March of 2004 at the age of 60. This is from my point of view as his only son, who loves the man who raised him, as the condition, and Life, moves ahead.”
- The Reluctant Carer – “I care for my husband who has Huntington’s Disease. I’m new to this caring or ‘uncaring’ and I’m struggling. In being honest about this, maybe other carers will feel less guilty and less alone.”
- The Yellow Wallpaper – “Caregiving, Alzheimer’s, Mothers, Daughters, Dying”
- Tracey’s Life – “This is my story of raising two children 14 and 16 who are not mine, but they are mine in my heart. My friend Sharon, their mother, is in a nursing home with Multiple Sclerosis. This is the story of our adventures in life!”
- Within Crepusculum– “I provide total care for my aging Mother, question why she must endure such an unacceptable darkness, anxiously wait for that day, hour or next minute when she will leave my humankind, anxiously wait for my destiny, experience frustration to its fullest and believe life is more dubious than it ever has been.”
Few things get my Grandmom hopping like listening to Bing crooning away so a few years ago I got her a CD collection of his. I feel fortunate that I had early exposure to ‘Classics’; many in my generation and even the generations before me have only a vague idea of what sort of music our elders listened to in their youth.
If you’re looking to buy some nostalgic music for an elderly loved one, here’s a list of ‘Greats’ that its hard to go wrong with!
Nat King Cole
How pleasant it is for a father to sit at his child’s board. It is like an aged man reclining under the shadow of an oak which he has planted.
I’ve had a hard life, but my hardships are nothing against the hardships that my father went through in order to get me to where I started.
My father didn’t tell me how to live; he lived, and let me watch him do it.
Clarence Budington Kelland
When I was a boy of fourteen, my father was so ignorant I could hardly stand to have the old man around. But when I got to be twenty-one, I was astonished at how much he had learned in seven years.
I talk and talk and talk, and I haven’t taught people in 50 years what my father taught by example in one week.
My father, when he went, made my childhood a gift of a half a century.
Nothing I’ve ever done has given me more joys and rewards than being a father to my children.
It was times like these when I thought my father, who hated guns and had never been to any wars, was the bravest man who ever lived.
By the time a man realizes that maybe his father was right, he usually has a son who thinks he’s wrong.
My father gave me the greatest gift anyone could give another person, he believed in me.
By profession, I am a soldier and take pride in that fact. But I am prouder – infinitely prouder – to be a father. A soldier destroys in order to build; the father only builds, never destroys. The one has the potentiality of death; the other embodies creation and life. And while the hordes of death are mighty, the battalions of life are mightier still. It is my hope that my son, when I am gone, will remember me not from the battle field but in the home repeating with him our simple daily prayer, ‘Our Father who art in Heaven.’
The words that a father speaks to his children in the privacy of home are not heard by the world, but, as in whispering-galleries, they are clearly heard at the end and by posterity.
Jean Paul Richter
Being a father, being a friend, those are the things that make me feel successful.
I learned from the example of my father that the manner in which one endures what must be endured is more important than the thing that must be endured.
My father died many years ago, and yet when something special happens to me, I talk to him secretly not really knowing whether he hears, but it makes me feel better to half believe it.
It is much easier to become a father than to be one.
My father used to play with my brother and me in the yard. Mother would come out and say, “You’re tearing up the grass.” “We’re not raising grass,” Dad would reply. “We’re raising boys.”
I am not ashamed to say that no man I ever met was my father’s equal, and I never loved any other man as much.
You know, fathers just have a way of putting everything together.
One night a father overheard his son pray: Dear God, Make me the kind of man my Daddy is. Later that night, the Father prayed, Dear God, Make me the kind of man my son wants me to be.
A truly rich man is one whose children run into his arms when his hands are empty.
Can you relate to any of our quotations? Do you have a quote that you’d like us to add to our collection? Please, let us know!
The generation that lived through the storm of World War II has been called the Greatest Generation. This Memorial Day that generation is close to fading into history, the coming years will hold our last chances to hear them in the flesh.
Keep the Spirit of ’45 Alive! is a non-profit organization collecting stories from that generation and encouraging later generations to listen to those who lived through history while they still can. The story of Edith Shain is part of their collection.
I’m a nurse working at Doctors’ Hospital in Manhattan. The radio in my patient’s room is playing “Don’t Sit Under the Apple Tree”. My patient is taking the medication I handed to him.
The music is interrupted with an announcement that Japan has surrendered and the war is over…
I’m stunned, incredulous, and joyful. Fifteen minutes later, after removing my cap, I’m running to the subway. I get on the train to Times Square.
When I get there, I run up the steps and to the street, walk a short distance.
I’m surrounded by jubilation. Soldiers, sailors, old and young civilians. I celebrate with them.
A sailor puts his arm around me, bends me back, holds me, and gives me a long kiss. I close my eyes. When he releases me, I turn in the opposite direction and walk away.
The sailor is a symbol of all who fought in the horrific savagery of the war who shared courage, responsibility, and commitment.
We at home were with you.
Now, we are all together; the combination of all of our efforts.
Now, the empty spaces will be filled.
Now, the broken pieces will be put together.
Now, relationships will be repaired.
Now, we have peace.
This Memorial Day ask someone who lived through World War II to share their story.